I had a heart attack back in 2008. I was lucky. My local emergency room facility and the intensive care unit hospital that I was transferred to happened to share my medical records in electronic format. But only about 10% of U.S. hospitals use electronic records so if this had happened away from home I probably would have died because no other doctor or hospital would have known about my pre-existing medical conditions.
It was suddenly very easy for me to see the need for a system that would allow consumers to take their medical records with them wherever they go. Not only for emergencies but for everyday reference. Some quick Googling revealed Personal Health Record (PHR) solutions from Microsoft (HealthVault), Google (Google Health) and a large number of others, but consumer adoption was low. I also discovered that the Electronic Medical Records (EMRs) used by hospitals and doctors were no solution because they are inaccessible to consumers and practitioners outside the system.
I enlisted the help of my personal doctors, friends and classmates who work in the healthcare field as well as other technologists who are consulting to large medical organizations around the country. All told, we have consulted with 36 experts who freely gave us their opinions about the issues surrounding EMRs and how a comprehensive PHR should be designed in order to deliver high value to consumers while potentially saving lives. I summarize the issues in BOLD and describe how we address them.
So today we at ZeroNines introduced ZenVault Medical (www.zenvault.com/medical), a Cloud-based, private, encrypted, online PHR for consumers that you can access through a computer or mobile device. In addition to helping people with their medical care, it’s a great example of how the Cloud and other cutting-edge technologies can come together to create a unique and valuable consumer product.
Background: The Need for Digital Medical Records
If you’re like most people, your medical records are scattered among a number of doctors and they are hard to get to. The Obama administration wants the country to convert to Electronic Medical Records. The goal is to improve healthcare and cut costs by making an individual’s collection of medical records available electronically at any hospital or doctor’s office, cutting down on paper volume, saving time, and increasing accessibility particularly in emergencies. This truly needs to happen – my own experience proves that – but the issue is how.
The Problem: Security, Privacy, and Reliability
Questions surrounding security and privacy make many citizens and consumer advocates reluctant to jump on board. Will such a system be run by the government or by business? Who will have access? Will sensitive personal information about illnesses, prescriptions, and treatments be turned over to insurance companies? To marketers? To employers? Can any body of law successfully regulate how such highly personal information is handled and protected, enabling it to benefit the individual yet keeping it out of the hands of those who would profit by violating privacy? Is it even the government’s place to get involved with personal medical records? And what technology is secure enough to handle all this?
Security: Any medical records system needs to keep hackers at bay. Well-publicized data breaches with Microsoft and Google call into question their ability to protect medical privacy. Frankly, I decided to subscribe to one of these systems before we came up with ZenVault, but was concerned with who might be accessing my records and selling it to insurance companies and marketing firms.
Privacy: Many companies offering free digital medical records turn around and sell customer data to pharmaceutical and insurance companies. And a September 16 2010 article in the Wall Street Journal described a data breach wherein a Google engineer broke the company’s privacy policies by accessing private customer information.
Reliability:If anything needs 100% uptime, it’s medical applications. Take a look at some of the high-profile downtime events discussed in the rest of this blog and then imagine the cost in lives and well-being if they had affected hospital emergency rooms.
The Solution: Customer Control of a Safe, Secure, and Always Available™ Personal Health Record
Simply putting control of the health record in the hands of the individual consumer or patient addresses the bulk of these concerns. If no one can read the record but the customer, that’s most of the battle won. So what is the difference between ZenVault Medical and other consumer-facing PHRs like Google Health and HealthVault?
Security: ZenVault encrypts stored records with a patent-pending variant of the NSA-approved encryption protocols that protect top-secret information. ZenVault does not employ a “key ring” that stores customer encryption keys which means there is no copy available for anyone to find and rummage through your data. The customer creates his or her own unique encryption key so only they can access and edit their private medical records. SSL-secured sessions protect data in transit from computers, smartphones, and tablets.
Privacy: ZenVault never shares information. Period. We don’t sell it, rent it, or give it away, not even in a “sanitized” format like some admit to doing. We charge consumers for our service and our business model is based on customer trust. If they don’t trust us we lose. In fact, our encryption system prevents even our own engineers and administrators from reading patient data, so we couldn’t sell it even if we wanted to. How’s that for a guarantee?
Reliability: ZenVault uses ZeroNines' Always Available™ technology designed to protect the world's most sensitive financial and military computer systems. There is virtually no "downtime" or data loss with ZenVault. A Cloud-based infrastructure helps keep costs down, ensures scalability, and supports universal accessibility. Use of Always Available allays any concerns over Cloud reliability. In fact, we intend to use ZenVault as an example of a highly reliable, high-usage application deployed in the Cloud. Read more about Always Available on the ZeroNines.com website ZeroNines.com website.
Convenience: Users can update or read their records anywhere they have Internet access. They can send their records to any doctor with just a few clicks using a secure message system. Have you ever wasted time at a doctor appointment filling out a clipboard full of medical history forms? Use ZenVault to send them your PHR instead! Doctors can send patients their records, lab results, and x-rays with equal ease.
Affordable: A free account is available, offering a basic PHR with full security, encryption, and privacy protection. A premium account adds advanced features for a small monthly charge.
Secure Emergency Room Access: ZenVault offers emergency rooms their own accounts with their own special encryption keys. They get controlled access to six key fields in a patient’s record such as history of heart disease, drug sensitivities, and emergency contact information. This gives them the basic information they need to save a life and contact loved ones yet protects the majority of personal information until the patient or their family elects to release it.
Take Your Personal Health Record with You
If you have Internet access, you can use ZenVault. I hope none of you ever has a medical emergency like the one that sent me to the hospital two years ago. But if you do, ZenVault could save your life by putting the needed information in the right place, at the right time. I have no doubt that one day a universal health record database will be a reality, but until then you can have all the benefits while keeping control yourself. Try it out and let me know what you think: www.zenvault.com/medical.
Visit the ZeroNines.com website to find out more about how our disaster-proof architecture can protect businesses of any description from downtime.
Alan Gin – Founder & CEO, ZeroNines
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